Waiting For a Miracle

As many of you know, Trinity is in the pediatric ICU at St. Luke's Regional Medical Center in Boise, Idaho. She's been having seizures but as yet there is no diagnosis aas to what the underlying problem might be. Autumn and I are learning a great deal and I am getting a crash course in ICU medicine. Trinity has been sedated since Monday morning about 2am Mountian Time. She is on a ventilator, so the sedative is to keep her from fighting all the tubes.

One thing we have learned is that we don't have control of this situation. It's hard because I don't want my daughter to suffer. I don't want her to have permanent damage from this. I want my daughter back because I miss her terribly. But I have to let all of that go and trust that God has our best in mind. I have to because I can't do a single thing to help her right now. So I pray and cry a little and sing to my baby. Autumn is doing the same.

We have been incredibly blessed to have support from all over the world in prayer and kind thoughts and words. Those that can, have driven here and supported us with hugs, laundry and good company. We are so grateful to all of you for your thoughts and prayers. Please keep them up! Here are a few pictures from the journey so far:

This was actually last Wednesday at Barley Brown's, where we went for dinner for Autumn's birthday. It was her first time in a big girl high chair at a restaurant. What a big girl!

This is her on Saturday, after she had been in the hospital for a day and was showing improvement. She declined the evening after this, so this is the last time we saw the Trinity that we were used to.
If you look closely you can see Trinity's handprint on the mirror. One of the things we do at home is to look at ourselves in the mirror. She likes to reach out and touch her reflection. We did this once at the hospital before we took a nap together.

Autumn has been so vigilant this whole time. I don't know how she does it. She has been outside only twice in the last 5 days. For those of you who know Autumn, you know that this is unusual. Autumn usually can't go 5 hours without getting out for a bit. I am so amazed by her and so proud of her as a mom. She has been such a great support to me as well. She is strong.

Through all of this, we continue to rely on God's mercy and providence. I was reading the Bible this morning, in the book of Psalms. Here is a Psalm of David that I am encouraged by:
Psalm 27:13-14
I am still confident of this:
I will see the goodness of the Lord in the land of the
living.
Wait for the Lord; be strong and take heart and wait for the
Lord.
Grace and peace be with all of you as it has been with us. Thank you for loving us, praying with us, crying with us and continuing to hope.

Comments

  1. You guys stay strong and know that we are praying for Trinity to be Trinity agian. We love you guys!!

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  2. I'm so sorry you guys are going through such a painful time, this post brought tears to my eyes as I imagined how I would feel in your position. I'm praying for baby Trinity and everyone who loves her.
    <3

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  3. May God surround all of you with His peace, love, and assurance of His presence. We lift you all up to Him each day. Stay well and take good care of each other.
    In His Name,
    Ma'Lena

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  4. Josey and Rob GaslinAugust 26, 2009 at 9:15 PM

    We are praying for your sweet family and for the doctors that are caring for Trinity!
    Love to you all,
    Josey and Rob

    The Lord bless you and keep you;
    The Lord make His face shine upon you
    and be gracious to you;
    The Lord turn His face toward you
    and give you peace.

    Numbers 6:24-26

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  5. Hey, I heard Autumn is holding Trinity!! I need a photo, Aaron!! YIPPEE I AYE!! - Shirtcliff's

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  6. Our thoughts are with you at this time. Reading your story has brought back alot of memories of my recent stay with St lukes. The staff is wonderful and will do everything to help you through this difficult time. My son spent his first 7 weeks in the NICU there and is about the same age as Trinity.
    Laurel & Ryder Nimmo

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  7. Am in constant prayer for you and the family... we had a similiar incident with a grand child... only open heart surgery as a newborn.. I feel your pain ....but do know that God is good, and he will take care of your every need....Anonymous

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